Nina Paley on Nostr: finally met with my assigned pulmonologist today! My bronchiectasis is mild. My ...
finally met with my assigned pulmonologist today!
My bronchiectasis is mild. My “ground glass opacities” are nodules and granulomas which look benign and are currently small enough to warrant only monitoring. Bloodwork indicates my symptoms are mostly from infections, not allergies, and I am slowly recovering from those infections.
She said I’m on the right track with nebulizing saline and nasal lavage, although “God gives us mucus for a reason” so I’m not to rinse my sinuses more than 3x per day, 2x per day preferred. I must continue masking in public and avoiding infections like the plague, which they are for me now. Both the Skyrizi (monoclonal antibody medication for treating Crohn's) and Crohn’s Disease itself make me extra vulnerable to infection, and yes, Crohn’s may be expressing itself in my lungs. Oh yeah also I'm old now, she reminded me.
It looks like I’m recovering from the worst of my infections, which I believe were RSV in March and adenovirus in April, plus something bacterial because I responded to antiobotics and anti bacterial eyedrops (pinkeye was but one of many symptoms). I need to accept infections may last a lot longer and be more severe than I thought normal.
After I take another month to recover, I will go back for lung capacity tests and an EKG to see how my heart’s doing. The pulmonologist guided me through my CT scans, pointing out granulomas, nodules, and bronchiectasis, and said several times how good my lungs looked. I still gots capacity!
Pix are of me killing time with the plastic lung model while waiting for the pulmonologist to arrive. I was with a friend who took these photos and also notes, for which I am very grateful.
Published at
2025-05-22 19:04:19 UTCEvent JSON
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"content": "finally met with my assigned pulmonologist today! \n\nMy bronchiectasis is mild. My “ground glass opacities” are nodules and granulomas which look benign and are currently small enough to warrant only monitoring. Bloodwork indicates my symptoms are mostly from infections, not allergies, and I am slowly recovering from those infections. \n\nShe said I’m on the right track with nebulizing saline and nasal lavage, although “God gives us mucus for a reason” so I’m not to rinse my sinuses more than 3x per day, 2x per day preferred. I must continue masking in public and avoiding infections like the plague, which they are for me now. Both the Skyrizi (monoclonal antibody medication for treating Crohn's) and Crohn’s Disease itself make me extra vulnerable to infection, and yes, Crohn’s may be expressing itself in my lungs. Oh yeah also I'm old now, she reminded me.\n\nIt looks like I’m recovering from the worst of my infections, which I believe were RSV in March and adenovirus in April, plus something bacterial because I responded to antiobotics and anti bacterial eyedrops (pinkeye was but one of many symptoms). I need to accept infections may last a lot longer and be more severe than I thought normal. \n\nAfter I take another month to recover, I will go back for lung capacity tests and an EKG to see how my heart’s doing. The pulmonologist guided me through my CT scans, pointing out granulomas, nodules, and bronchiectasis, and said several times how good my lungs looked. I still gots capacity!\n\nPix are of me killing time with the plastic lung model while waiting for the pulmonologist to arrive. I was with a friend who took these photos and also notes, for which I am very grateful.\n\nhttps://media.spinster.xyz/a57fb18657ce521bb7640c08e16a8b916e8f8c86ad1d2247508ea3ef4d036dd1.jpeg\nhttps://media.spinster.xyz/c08ee51809e001e459dd5b97af04d440d0754c932a911103dc251f1cdaa2df62.jpeg",
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