Ms. Que Banh on Nostr: Good news: Mom was discharged on Tuesday night. She got her cardiac CT done Tuesday ...
Good news: Mom was discharged on Tuesday night. She got her cardiac CT done Tuesday afternoon. She has slept well for first 2 nights back at home. Her blood pressure was high before we got a new prescription to regulate it & this morning it's 129. Blood sugar is stabilized. Mom can use a sturdy 4-footed cane around the house. She needs assistance with her meds, bathing & is not allowed to navigate stairs or anywhere outdoors alone, for safety. She washes her own mug.
Bad news: We still have no date for her Y-90 booking. We still haven't been contacted by local cancer centre to be able to access more support services. VGH didn't give me any discharge report paperwork; only received a double sided sheet with medications/prescription info. I need the full discharge report for our records & to apply for some more help. VIHA didn't connect me to any community supports for Mom/my family - still juggling everything by myself.
Frauke helped pay for 6 medications. One newer one - Rifaximin - cost me almost $600 & it's only enough for 30 days.
I have a post discharge appointment with Mom's GP at 3:50pm today & hoping he can help us find a generic, more affordable prescription to replace Rifaximin or if he can write & apply for special approval assistance to lower the cost.
I'm really overwhelmed & praying for more hands to help me over next couple of weeks until we all adjust to new family schedules/sharing of caregiving duties. My brother Steve is coming down again on Friday to help out some more.
I haven't seen anyone except my family & medical people for awhile. I don't have spoons to socialize/do much other than focus on my family.
People can contact me on Signal but be aware I don't often respond quickly.
#LiverCancer #Cancer #Caregivers #PrayersForMom #LivingWithCancer
Published at
2026-10-15 17:21:03 UTCEvent JSON
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"content": "Good news: Mom was discharged on Tuesday night. She got her cardiac CT done Tuesday afternoon. She has slept well for first 2 nights back at home. Her blood pressure was high before we got a new prescription to regulate it \u0026 this morning it's 129. Blood sugar is stabilized. Mom can use a sturdy 4-footed cane around the house. She needs assistance with her meds, bathing \u0026 is not allowed to navigate stairs or anywhere outdoors alone, for safety. She washes her own mug.\n\nBad news: We still have no date for her Y-90 booking. We still haven't been contacted by local cancer centre to be able to access more support services. VGH didn't give me any discharge report paperwork; only received a double sided sheet with medications/prescription info. I need the full discharge report for our records \u0026 to apply for some more help. VIHA didn't connect me to any community supports for Mom/my family - still juggling everything by myself.\nFrauke helped pay for 6 medications. One newer one - Rifaximin - cost me almost $600 \u0026 it's only enough for 30 days.\nI have a post discharge appointment with Mom's GP at 3:50pm today \u0026 hoping he can help us find a generic, more affordable prescription to replace Rifaximin or if he can write \u0026 apply for special approval assistance to lower the cost.\n\nI'm really overwhelmed \u0026 praying for more hands to help me over next couple of weeks until we all adjust to new family schedules/sharing of caregiving duties. My brother Steve is coming down again on Friday to help out some more.\nI haven't seen anyone except my family \u0026 medical people for awhile. I don't have spoons to socialize/do much other than focus on my family.\n\nPeople can contact me on Signal but be aware I don't often respond quickly.\n\n#LiverCancer #Cancer #Caregivers #PrayersForMom #LivingWithCancer\n\nhttps://media.beige.party/media_attachments/files/117/445/990/645/368/087/original/8d543ff3cd94a57c.jpg\nhttps://media.beige.party/media_attachments/files/117/445/990/755/757/782/original/7f03925f3f8f7c0f.jpg",
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