Well another day this family is without help to handle full care for my son with disabilities. I’m a full time caregiver, 12 hours per day, 7 days a week. Same for his brother, my youngest son. However BOTHsons have broken legs or broken ankles. However one refers to a broken bone in fibula or tibia just above ankle.
How does one get a person who is disabled out of their hospital bed and into their wheelchair? Answer: doesn’t happen. I can’t do it by myself. Brother had his leg surgery on Thursday and has crutches. As you can imagine, he is NOT to put weight on his leg. I’m not strong enough to lift Drew by myself.
Drew doesn’t qualify as needing nursing care since he only requires 24/7 caregivers. State is unable to find a temporary caregiver to assist me as backup or to take any shifts. We’ve fallen in a gap between what is necessary medical or care needs for a dependent adult. In addition, the medical transport his insurance pays for has not located any provider for the 5 rides he needs for specialists to follow up from the accident/fall.
The government doesn’t pay enough for caregivers so there is a vast shortage across the US. The government doesn’t provide for enough group homes or nursing homes either so there are waiting lists of many years.
Now tell me, what happens to my dependent adult son IF his sole functional caregiver is unable to care for him? What if I had a heart attack right about now or died in a car crash? Don’t know the answer? Well, in the US there are many people in precarious situations that can become a flat-out emergency at any time. Our government here is fine taking that risk. As usual besides the stress I have far more worry than a person should have to bear. I also wonder if the government would do anything differently to prevent a full scale life and death situation here. What if it was so dire, it made the news? Hmmmm. Things that make you wonder.
cobalt
npub1ph…pvvzc
2026-09-14 19:07:29 UTC
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npub1phdm7m4dk2akpvhlzr7lw4va30med7gn9p5h7escpkhjl9t68ktsspvvzcSeen on
wss://relay.momostr.pinkPublished at
2026-09-14 19:07:29 UTCEvent JSON
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