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2025-12-01 07:15:39 UTC
in reply to

JW on Nostr: There are some brilliant examples of countries with good patient data sets ...

There are some brilliant examples of countries with good patient data sets successfully making it available for research with full protection of patient privacy. One common theme of these examples is access to the data is through a government organisation, not a private business. Privatisation of access reduces public good and privacy constraints over profit. This includes limiting access of the data to potential competitors.

Treasury control creates a risk of priotising revenue over broader society benefits which could include improved public health, and potentially improved productivity.